Jeremy…husband of Catherine, father of Ben, Simeon, Tom, Joshua & Lydia. Up until the end of April 2015, he was pastor/vicar of a group of churches on the edge of Exeter in Devon, UK. In early October 2014, aged 48, he was diagnosed with advanced cancer, a stage four malignant melanoma presenting as a tumour on his lungs. The usual life expectancy is 8-12 months. Then, in late December 2014, 23 year old Ben suffered a seizure. After prolonged medical care for what was most likely to have been a viral infection affecting his brain, Ben died in April 2015. Jeremy has up until recently seemed to have responded well to pioneering immunotherapy treatments that can extend life, but from September 2016 is now facing the fresh development of brain tumours and potentially now just months to live. On January 27th 2017 Jeremy took his last breath and went to be his Lord and Saviour. The family share their thoughts, feelings and reflections as they taJeremy…husband of Catherine, father of Ben, Simeon, Tom, Joshua & Lydia. Up until the end of April 2015, he was pastor/vicar of a group of churches on the edge of Exeter in Devon, UK. In early October 2014, aged 48, he was diagnosed with advanced cancer, a stage four malignant melanoma presenting as a tumour on his lungs. The usual life expectancy is 8-12 months. Then, in late December 2014, 23 year old Ben suffered a seizure. After prolonged medical care for what was most likely to have been a viral infection affecting his brain, Ben died in April 2015. Jeremy has up until recently seemed to have responded well to pioneering immunotherapy treatments that can extend life, but from September 2016 is now facing the fresh development of brain tumours and potentially now just months to live. On January 27th 2017 Jeremy took his last breath and went to be with his Lord and Saviour. The family share their thoughts, feelings and reflections as they take this painful and unexpected journey.

Ben on Sunday…

Ben remains in a stable, but unchanged condition in the Intensive Care Unit. During the night, he had a convulsion despite being sedated. The medical team this afternoon have tried to bring him around and get him breathing without assistance but he wasn’t sufficiently responsive so they have put him back under full sedation and breathing via a ventilator. Blood samples have been taken so that the microbiologists can check for any infections or clues (eg anything he may have picked up in Brazil). An EEG scan of his brain has been ordered also so that the neurology team can start to make their assessment.

Our daughter-in-law Dabi remains at his bedside, and Catherine and I and various of our children are coming and going. As we knelt in a circle round the coffee table together last night holding hands as a family, we prayed asking for Father’s strength and protection and that the day’s events would somehow prove useful. Ever since he first suffered with this in July in Brazil, the medical teams have never been totally satisfied with the original Myasthenia Gravis diagnosis. We’re now praying that this traumatic episode might speed up the process of diagnosing whatever Ben has.

What it does to a parent watching a child, no matter what age, going through something like this, is so painful and traumatic, especially when you see them attached to machines by a thousand tubes and lines. But a friend emailed us in the wee, small hours of this morning words from Psalm 33 –

Anchor-as-crossThe Lord watches over them that fear Him, those who rely on His unfailing love. He rescues them from death and keeps them alive in times of famine.

And then another friend emailed words of an old hymn –

We have an anchor that keeps the soul steadfast and sure while the billows roll. Fastened to the rock that cannot move; grounded firm and deep in the Saviour’s love.

We walk on, stumbling at times, feeling our way in what feels like the dark. Helpless, but not. Powerless, but not.

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Comments on: "Ben on Sunday…" (14)

  1. I can’t even begin to imagine what the past few days must be like for you. Holding you in prayer this evening.

    Romans 5:2,5
    And we can boast in the hope of the glory of God… hope that will not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit who has been given to us.

    Hoping & praying for divine intervention, for dry bones to be enfleshed, pain healed and the God of new beginnings to be seen present and active in your lives x

    Liked by 1 person

  2. Brenda Lockett said:

    I would just like to echo the sentiments of Jack so beautifully put.

    Liked by 1 person

  3. Janet Garrick said:

    Dear Jeremy and Catherine,

    We send you much love at this difficult time.

    Tony and Jan

    Sent from my iPad

    >

    Liked by 1 person

  4. Christine Curd said:

    Much love, this must be so exhausting. I too was helped by that hymn about the anchor. A storm at sea can be totally disorienting, all sense of direction gone and no stars by which to steer. But the anchor holds. The storm is so very real and horrible but our Lord’s love withstands it all. Look after yourselves.

    Liked by 1 person

  5. Jill Willett said:

    Like many, many people who don’t know you, but have the privilege of reading your blogs, we are praying for God’s mercy, grace, strength and healing for you all at this incredibly difficult time xxx

    Liked by 1 person

  6. Alison Taylor said:

    Jeremy & Catherine, what an incredibly difficult time for you all; we continue to pray for you daily & send much love.

    Liked by 1 person

  7. Nicola Cowling said:

    My heart goes out to you all. I am keeping you in my prayers and the prayers of the Cathedral community are with you.

    Liked by 1 person

  8. Thinking and praying for you all through this really stressful & emotional time. Thanks once again for your blog updates, to find the time and strength xx

    Liked by 1 person

  9. My heart goes out to you as a family , and at the moment my prayers are with Ben and his Doctors, hoping that together they may find a profound pathway to enlightened treatment and God willing, Ben’s complete recovery. And you brave family members that witness and suffer with Ben, I pray for blessings of light and grace to relieve your suffering.I also seek protection for Jeremy, who I pray may have the peace and rest necessary for the continuing extension of his own life.

    Liked by 1 person

  10. We keep praying!

    Liked by 1 person

  11. Jane Crocker said:

    Dear Jeremy my prayers are with you all . We has a family went through a terrible time with our grandson Zachary he was in ICU with tubes everywhere but he is now well and I know it helped having a wonderful family , friends and my church family praying for him at all times . I know god helped me get through it please keep strong xxxxx

    Liked by 1 person

  12. Chris Saunders said:

    May God’s love and peace fill your waking and sleeping. We pray for miracles.

    Liked by 1 person

  13. Ruth Prince said:

    So happy that you have Ben in this country and can be St his bedside and support Dabi too

    Liked by 1 person

  14. I have had to re-read your blog quite a few times in disbelief Jeremy. You are truly surrounded by such loving and lovely people within your close family and outside. I echo Chris Saunders blog for you all and I will also pray for miracles. God bless you and keep you all safe.

    Liked by 1 person

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