Ben remains in a stable, but unchanged condition in the Intensive Care Unit. During the night, he had a convulsion despite being sedated. The medical team this afternoon have tried to bring him around and get him breathing without assistance but he wasn’t sufficiently responsive so they have put him back under full sedation and breathing via a ventilator. Blood samples have been taken so that the microbiologists can check for any infections or clues (eg anything he may have picked up in Brazil). An EEG scan of his brain has been ordered also so that the neurology team can start to make their assessment.
Our daughter-in-law Dabi remains at his bedside, and Catherine and I and various of our children are coming and going. As we knelt in a circle round the coffee table together last night holding hands as a family, we prayed asking for Father’s strength and protection and that the day’s events would somehow prove useful. Ever since he first suffered with this in July in Brazil, the medical teams have never been totally satisfied with the original Myasthenia Gravis diagnosis. We’re now praying that this traumatic episode might speed up the process of diagnosing whatever Ben has.
What it does to a parent watching a child, no matter what age, going through something like this, is so painful and traumatic, especially when you see them attached to machines by a thousand tubes and lines. But a friend emailed us in the wee, small hours of this morning words from Psalm 33 –
And then another friend emailed words of an old hymn –
We have an anchor that keeps the soul steadfast and sure while the billows roll. Fastened to the rock that cannot move; grounded firm and deep in the Saviour’s love.
We walk on, stumbling at times, feeling our way in what feels like the dark. Helpless, but not. Powerless, but not.